Coping with NSF
The diagnosis of NSF often provokes a profound emotional response in the patient, family members and friends. Denial, depression, a feeling of hopelessness, and fear are normal and usual reactions. No single response is either expected or unexpected.
A lack of understanding of what's in store, the unknown, and what's next should be met by thoughtful, straightforward, and frequent discussions between physician, nurse, patient and family. An inability to work, tend to business affairs, care for one’s family and interact with friends in the usual manner, all contribute to emotional distress. Thorough explanations, including the prospects and the plans for treatment may bring emotional relief as the patient focuses on the treatment ahead and the prospect of remission.
Family members or loved ones may have questions about the different type of therapies and alternative methods of treatment. It is best to speak directly with physicians regarding specific medical questions. Family members or loved ones should discuss any problems or reactions they may have. What makes this disease particularly difficult to deal with is as this is such a rare disease many nurses and other health professionals do not understand the complexity of emotions and special ongoing needs of those living with NSF. Call us for a list of doctors with experience dealing with the disease.
Find out more about… Financial Assistance | What to Ask Your Doctor
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